When fluid leaks out at spinal level, pressure and fluid volume around the brain reduces (known as intracranial hypotension) which allows the brain to sag within the skull. It can occur in the head or spine as result of trauma, surgery, an underlying disorder, or spontaneously. It also acts as a resource for the medical profession.Ī CSF leak is a serious and often incapacitating medical condition stemming from a tear or hole in the membrane that contains the fluid surrounding the spinal cord and brain. The CSF Leak Association aims to provide support and advice to sufferers, their families and supporters. The charity is the only organisation which specifically supports people with this type of spinal leak. The CSF Leak Association is a UK-based Scottish Charitable Incorporated Organisation and registered charity working to raise the profile and support understanding of cerebrospinal fluid leaks across the UK and Ireland. We were there to assess a grant towards “Leakline” – an online education and support hub for people suffering with spinal CSF leaks.Ībout the CSF (Cerebrospinal Fluid) Leak Association On 17th May 2019, Roy Smith (HSF health plan Head of Sales, Business Development and Marketing, Ireland) and I, met Tamsin Trevarthen, Trustee of the CSF Leak Association in Dublin.
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